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    題名: 性別與疾病的交織：台灣紅斑性狼瘡女性病友的身體與病痛敘事
    Intersecting Gender with Disease: Body and Illness Narratives of Taiwanese Women with Systemic Lupus Erythematosus
    作者: 林佳妤
    Lin, Chia-Yu
    貢獻者: 劉子愷
    Liu, Tzu-Kai
    林佳妤
    Lin, Chia-Yu
    關鍵詞: 紅斑性狼瘡
    交織性
    互為主體性
    病痛敘事
    醫療人類學
    Systemic Lupus Erythematosus (SLE)
    Intersectionality
    Intersubjectivity
    Illness Narratives
    Medical Anthropology
    日期: 2025
    上傳時間: 2025-03-03 14:53:13 (UTC+8)
    摘要: 本論文探討台灣女性紅斑性狼瘡(SLE)患者的醫療經驗，關注她們接受台灣的醫學治療，她們與疾病共處、與病痛共體的過程，凸顯她們在醫療場域與社會場域所面臨的疾病和性別的交織情況和壓力，以及她們透過人際互動和病痛敘事(illness narrative)重新認識醫學觀點的「疾病」(disease)和病人觀點的「病痛」(illness)的交錯影響，形塑她們與紅斑性狼瘡之間互為主體的關係。女性病友們在人與醫療、人與藥物、伴侶關係、病友社群照護、自我敘事的不同場域，面對「生病身體」的醫療化，以及「性別化身體」的性別交織影響，除了體現多重交織和不平等關係，也顯示她們對於紅斑性狼瘡，從個人的否定到接納、揭露或不揭露、藥物遵從或不遵從、生育或不生育，再到個人與伴侶、個人與病友社群間建立互為主體的互動、對話和敘事行動。
    本研究以深度訪談與參與觀察為研究方法，運用「交織性」(intersectionality)與「互為主體性」(intersubjectivity)為理論架構，並透過實體訪談與線上社群的參與觀察蒐集台灣女性紅斑性狼瘡患者的身體經驗和病痛敘事，提出以「交織性」概念分析女性患者在醫療場域、伴侶關係、職場環境所面臨疾病與性別的交織影響和壓力，並以「互為主體性」理論分析女性病友的病痛敘事，以彌補由交織性概念無法完整探究台灣女性紅斑性狼瘡的病痛和身體經驗。本研究發現台灣女性狼瘡患者的病痛經驗受到醫療體系與社會文化的多重牽制，一方面，醫病關係與藥物治療影響了女性病友對自身的生病身體和藥物身體的看法；另一方面，台灣社會對女性身體、容貌及生育能力的期待，使女性病友在疾病管理與自我認同間持續協商，並重建自我對疾病身份與性別身份的認同。本研究以互為主體性的視角，透過分析病痛敘事的方式看見女性狼瘡患者面對疾病與性別的交織影響所採取的立場和行動，並顯示出不同的立足點和敘事框架的轉換。女性病友在談論與疾病共處、與病痛共體的敘事中，看見她們在面對台灣醫療的疾病治療、以及女性性別規範的牽制下，以病人的病痛敘事和病友社群的照護方式，形塑和重新定義她們與疾病/病痛的多重關係。本研究期望透過台灣女性狼瘡病友的生命故事，促進台灣社會對狼瘡疾病/病痛經驗的理解，並為未來的醫療實踐與疾病性別研究提供新的視角。
    This thesis explores the medical experiences of female Taiwanese patients with Systemic Lupus Erythematosus (SLE), focusing on the medical treatment and the process of living with disease and embodying pain in Taiwan. It examines the intersection of disease and gender they faced in medical and social fields and the pressure they coped with these dynamics. It also underscores how these female patients (re)interpret and (re)configure the intersecting of the medical perspective of “disease” with the patient’s experiences of “illness” and how they narrate their intersecting experiences in and through the way of “illness narrative,” individually/collectively and online/offline, to reconfigure their intersubjective relationships with SLE. Female Taiwanese patients have gone through the medicalization of “sick body” and the gendered norm of “feminine body” in different fields, including medical system, medicine treatment, romantic relationships, community of patients and self-narration. In addition to exploring multiple intersecting and unequal relationships, this thesis also shows that these female patients have gone from personal denial to acceptance, disclosure or non-disclosure, medication adherence or non-adherence, fertility or non-fertility, and then to the establishment of intersubjective interactions, dialogues and narratives between individuals and their partners, and between individuals and the community of patients in Taiwan.
    This research uses the methods of in-depth interviews and participant observation, applies the theoretical frameworks of intersectionality and intersubjectivity and collects data of medical experiences and personal narratives of Taiwanese female patients. It uses the concept of “intersectionality” to analyze the intertwined impact and pressure of disease and gender faced by these female patients in medical and social fields. It further proposes the concept of “intersubjectivity” to analyze the illness narratives of female patients in that, I argue, the concept of “intersectionality” cannot fully explore the complexity of pain and bodily experiences of Taiwanese women with SLE. This study found that the medical experiences of female Taiwanese SLE patients are subject to multiple constraints and influences both from medical system and socially-defined gender norm. On the one hand, the doctor-patient relationship and medicine treatment affect the female patients’ views on their “sick body” and “medicine-controlled body.” On the other hand, in Taiwan societal expectations for women’s bodies, body appearance, and fertility make these female patients constantly negotiate between disease management and self-identity, and reconstruct their identifications with disease, illness and gender norms. From the perspective of intersubjectivity, this study analyzes the narratives of illness to see the positions and actions taken by these female SLE patients in the face of the intertwined impact of disease and gender. It also shows the different footings and shifts in narrative frames in these patients’ acts of illness narratives. The narratives of female patients talking about living with disease and embodying pain indicate that their multiple positionings and relationships with disease/illness are shaped and redefined agentively under the influences of the Taiwanese medical system, disease treatment and gender norms. This study hopes that the life stories of female SLE patients in Taiwan can promote society’s understanding and de-mystifying of SLE and provide a new perspective for future medical anthropological and gender research on SLE.
    參考文獻: 中文文獻
    Ahearn, Laura M.
    2020[2016] 〈第二章：手勢、手語與多模態性〉。刊於《活出語言來：語
    言人類學導論》(Living Language ── An Introduction to Linguistic Anthropology)。劉子愷、吳碩禹、蕭季樺譯，頁47-71。新北市：群學。
    Angrosino, Michael
    2009[2007] 〈第一章 緒論：民族誌及參與觀察研究法〉。刊於《民族誌
    與觀察研究法》(Doing Ethnographic and Observational Research)。張可婷譯，頁1-26。新北市：韋伯。
    Husserl, Edmund
    2022[1901] 《邏輯研究 第二卷: 現象學與認識論研究 第一部分》
    (Logische Untersuchungen) 。倪梁康譯。台北：五南圖書。
    Kleinman, Arthur
    2020[1988] 《談病說痛：在受苦經驗中看見療癒》(The Illness Narratives:Suffering, Healing and the Human Condition)。卓惠譯。台北：心靈工坊。
    Kleinman, Arthur
    2020[2019] 《照護的靈魂：哈佛醫師寫給失智妻子的情書》(The Soul of
    Care: The Moral Education of a Husband and a Doctor)。王聰霖譯。台北：心靈工坊。
    Luhrmann, Tanya
    2021[2000] 《兩種心靈：一個人類學家對精神醫學的觀察》。張復舜、廖
    偉翔譯。新北市：左岸。
    Lupus Canada
    2024 〈關於我們〉。https://www.lupuscanada.org/about-us/。
    Merleau-Ponty, Maurice
    2021[1945] 〈作為客體的身體和機械生理學〉、〈身體經驗和古典心理學〉。刊於《知覺現象學》(Phenomenology of Perception)。楊大春、張堯均、關群德譯。北京：商務印書館。
    My Lupus Diary
    2024 〈能成為蝴蝶是你破繭而出的最佳證明〉。
    https://www.instagram.com/p/DAAbD4TK1lk/。2024年9月17日上
    線。
    中華民國思樂醫之友協會
    2011 〈關於協會〉。http://www.sle.org.tw/front/bin/ptlist.phtml?Category=100693。年代不詳。
    王曉丹
    2019 〈女性主義為何漏接了房思琪？〉。刊於《這是愛女，也是厭女》。王曉丹主編，頁128-147。新北市：大家出版社。
    內政部戶政司
    2024 〈民國112年重要人口指標〉。2023年2月22日。
    石季子、李靜華、劉麗芳
    2005 〈一位全身紅斑性狼瘡病患脫離呼吸器之護理經驗〉。《領導護理》6(1):63-74。
    台灣免疫風濕疾病關懷協會
    2024〈SLE〉。年代不詳。
    成令方
    2002　〈醫「用」關係的知識與權力〉。《台灣社會學》(3): 11-71。
    朱怡靜、李佩怡
    2014 〈全身性紅斑性狼瘡病友之疾病經驗與協助初探〉。《諮商與輔導》343: 45-50。
    杜昀真
    2019 〈抗磷脂症候群與懷孕〉。《內科學誌》30(4): 264-272。
    李玉嬋、林逸婷
    2017　〈全身性紅斑性狼瘡患者的適應路～共依附特質、心理彈性與創傷後成長的運用〉。《諮商與輔導》376: 46-50。
    李浩維、王愷君、廖顯宗
    2020 〈2019歐洲抗風濕病聯盟全身性紅斑狼瘡治療建議更新與比較〉。臨床
    醫學月刊，85(5)：292-298。
    李淑菁
    2011 〈其實妳不懂我：性別研究不得不走的苦路──交織性〉。《性別平等教育季刊》(55): 96-99。
    李耀泰、陳福民、郭宗正
    2018 〈紅斑性狼瘡與懷孕的檢視〉。《臨床醫學月刊》81(3): 146-149。
    紀惠容
    2019 〈「8周法案」（心跳法案）豈可公投？〉。《蘋果日報專欄》。2019年10月7日。https://www.goh.org.tw/perspectives/how-can-heartbeat-bill-be-put-to-a-referendum/
    邱大昕
    2017　〈障礙與性別：女性視覺障礙者自傳中的做性別〉。刊於《邊緣主體：性別與身份認同政治》。楊芳枝主編，頁73-88。台南：成功大學人文社會科學中心。
    林昭吟、鄭雅之、張恒豪
    2018　〈當「不標準的病人」遇到醫療專業體制：身心障礙者就醫經驗的質化分析〉。《臺大社工學刊》(38): 99-146。
    林孝義、陳玉萍、葉純宜
    2014　〈全身性紅斑狼瘡病人治療及護理新趨勢〉。《榮總護理》31(2):121-128。
    林津如
    2019 〈性別與種族、階級和文化的交織──後殖民女性主義〉。刊於《女性主義理論與流變》。顧燕翎主編，頁478-519。台北市：貓頭鷹。
    吳汝鈞
    2001 〈自我與世界〉。刊於《胡塞爾現象學解析》。頁117-144。台北市：台灣商務。
    吳昭儀、潘璦琬
    2015　〈紅斑性狼瘡個案生活品質相關因素之系統性文獻回顧〉。《職能治療學會雜誌》33(2): 168-186。
    吳哲豪、廖炎智
    2022 〈中醫治療全身性紅斑性狼瘡之臨床策略〉。《中國鍼灸學雜誌》10(1)：142-151。
    馬繼耀、陳碧琪
    2017 〈風濕病科系列－系統性紅斑性狼瘡〉。香港風濕病基金會。
    歐陽軍
    2016 〈紅斑狼瘡的中醫藥治療〉。台灣中醫臨床醫學雜誌22(1)：59-67。
    陳宣羽、徐均宏
    2020　〈探討我國全身性紅斑性狼瘡患者性別比及好發年齡層分析〉。《健康管理學刊》18(1): 79-90。
    郭惠瑜
    2020　〈障礙與性別的交織：探討小兒麻痺女性母職經驗〉。《女學學誌：婦女與性別研究》46: 79-122。
    黃雅君、翁孟玉
    2021　〈綜論全身性紅斑性狼瘡及2019年歐洲抗風濕病聯盟暨美國風濕病醫學會治療指引〉。《內科學誌》32(2): 108-120。
    黃冠華
    2006 〈觀看不見：凝視的概念〉。新聞學研究，(87)，131-167。
    黃德豐
    2024 〈全身性紅斑性狼瘡的診療準則〉。年代不詳。
    曹家榮
    2016 〈混雜主體：科技哲學中的「後人類」〉。政治與社會哲學評論 57：47-93。
    楊大春
    2003 〈超越物性與靈性：心靈──身體之維〉。刊於《梅洛龐帝》。頁91-
    149。台北市：生智文化。
    曾凡慈
    2017 〈健康、疾病與風險：社會建構論的研究取徑〉。《傳播文化》16：42-65。
    曾馨儀、黃素雲
    2019　〈全身性紅斑性狼瘡女性患者生涯挑戰與因應經驗之研究〉。《台灣諮商心理學報》7(1): 1-34。
    游美惠
    2015 〈交織性／交錯性〉。《性別平等教育季刊》(71): 109-111。
    馮逸華
    2023 〈全身蝴蝶斑、關節腫痛⋯醫警告「此病」易復發：逾5成嚴重器官
    損傷〉。「Uho優活健康網」。https://www.uho.com.tw/article-6
    1491.html。2023年8月31日上線。
    陳俊名
    2014《台灣地區SLE病人類固醇之處方型態分析》。國立成功大學臨床藥學與藥物科技研究所碩士論文。
    張珣
    2001 〈婦女與醫療：對本土女療者的另類思考〉。《國家科學委員會研究彙刊：人文及社會科學》11(2): 126-134。
    張峰玉、蘇麗智、王曼蒂
    2014　〈全身性紅斑性狼瘡病人服藥遵從性及其影響因素之探討〉。《護理暨健康照護研究》10(1): 33-41。
    蔡鈺屏、鄭麗娟
    2006 〈一位紅斑性狼瘡合併細菌性關節炎患者之護理經驗〉。《志為護理-慈
    濟護理雜誌》5(6): 113-122。
    蔡瑛芷、陳靜儀、曾麗卿
    2021 〈一位紅斑性狼瘡患者併發心肌梗塞之護理經驗〉。《彰化護理》28(1): 57-69。
    鄭佳佩、李家靜、周怡伶、張淑閔
    2019 〈一位紅斑性狼瘡引發腎絲球腎炎病人之護理經驗〉。《秀傳醫學雜誌》18(2): 147-156。
    衛生福利部中央健康保險署
    2024 〈全民健康保險重大傷病各疾病別有效領證統計表〉。2024年5月。
    劉玲足、鄭靜瑜
    2002 〈一位紅斑性狼瘡初孕婦住院安胎之護理經驗〉。《志為護理-慈濟護理雜誌》1(3): 104-111。
    劉烈邦
    2024〈全身性紅斑狼瘡之致病原理〉。070-90年度內科醫學年會。
    劉斐玟、朱瑞玲
    2020 〈導論〉。刊於《同理心、情感與互為主體：人類學與心理學的對話》。劉斐玟、朱瑞玲主編。南港：中央研究院民族學研究所。
    劉斐玟
    2020 〈女書和女歌的文化心理情結：從「訴可憐」到「歌功頌德」〉。刊於《同理心、情感與互為主體：人類學與心理學的對話》。劉斐玟、朱瑞玲主編。南港：中央研究院民族學研究所。
    藍鼎淵
    2020〈最新全身性紅斑性狼瘡分類準則整理〉。《台北市醫師公會會刊》64(6)：37-42。
    賴怡嘉
    2006　《未婚女性罹患全身性紅斑性狼瘡之生病經驗初探》。國立台灣大學社會工作研究所碩士論文。
    簡妤儒
    2020 《懂牠的心聲：動物溝通中的毛小孩主體展現與關係實作》。科技醫療與社會31：67-114。
    龔卓軍
    2006 〈身體感：胡塞爾對身體的形構分析〉。《應用心理研究》(29): 157-181。
     
    英文文獻
    Adams, Katherine E., James M. Tyler, Rachel Calogero and Jenifer Lee
    2017　Exploring the Relationship between Appearance-Contingent Self-Worth and Self-Esteem: The Roles of Self-Objectification and Appearance Anxiety. Body Image 23: 176-182.
    Al-Faham, Hajer, Angelique M. Davis, and Rose Ernst
    2019 Intersectionality: From Theory to Practice. Annual Review of Law and Social Science 15: 247-265.
    Basta, Fabio, Fasola, Federica, Triantafyllias, Konstantinos et al.
    2020 Systemic Lupus Erythematosus (SLE) Therapy: The Old and the New. Rheumatology and Therapy 7, 433-446.
    Bhasin, Veena
    2007 Medical Anthropology: A Review. Ethno-Medicine 1(1): 1-20.
    Bombardier C, Gladman DD, Urowitz MB, Caron D, Chang CH.
    1992 Derivation of the SLEDAI. A disease activity index for lupus patients. The Committee on Prognosis Studies in SLE. Arthritis & Rheumatology35(6):630-40.
    Brady, Bernadette, Irena Veljanova and Lucinda Chipchase
    2019　The Intersections of Chronic Noncancer Pain: Culturally Diverse Perspectives on Disease Burden. Pain Medicine 20: 434-445.
    Brennan, Kirby A. M. and Ann-Marie Creaven
    2016　Living with Invisible Illness: Social Support Experiences of Individuals with Systemic Lupus Erythematosus. Quality of Life Research 25: 1227-1235.
    Browner, Carole Helen
    1999 On the Medicalization of Medical Anthropology. Medical Anthropology Quarterly 13(2): 135-140.
    Carder, Paula, Vuckovic, Nancy and Green, Carole
    2003 Negotiating Medications: Patient Perceptions of Long-term Medication use. Journal of Clinical Pharmacy and Therapeutics, 28: 409-417.
    Crenshaw, Kimberlé
    2018[1989] Demarginalizing the Intersection of Race and Sex: A Black Feminist Critique of Antidiscrimination Doctrine, Feminist theory, and Antiracist Politics. Feminist legal theory. Routledge 57-80.
    Chang, Lih-Chyun, Cheng-Han Wu, Chia-Lin Hsu, Jin-Yuan Shih and Chong-Jen Yu
    2018 IgG4-Related Lung Disease in a Patient with Systemic Lupus Erythematosus:A Case Report. Thoracic Medicine 33(2): 70-75.
    Chen, Yen-Fu, Yu-Wen Cheng, Cheng-Yen Yu, Yu-Hsiang Tseng, Zheng-Jia Wu and Kuang-Hui Yu
    2015 Prevalence, Prognostic Factors, and Survival Analysis of Systemic Lupus Erythematosus-related Serositis. Formosan Journal of Rheumatology 29: 10-18.
    Chuang H., Hung W., Chen Y., et al.
    2022 Genomic Sequencing and Functional Analyses Identify MAP4K3/GLK Germline and Somatic Variants Associated with Systemic Lupus Erythematosus. Annals of the Rheumatic Diseases, 81: 243-254.
    Chuang Tzu-Hui, Kuan-Chia Lin and Meei-Ling Gau
    2010 Validation of the Braden Self-Help Model in Women with Systemic Lupus Erythematosus. The Journal of Nursing Research 18(3): 206-214.
    Collins, Patricia Hill, ed.
    2019 Introduction and Intersectionality as Critical Inquiry. In Intersectionality as Critical Social Theory. Pp.2-53. North Carolina: Duke University Press.
    Degnen, Cathrine and Katharine Tyler
    2017　Amongst the Disciplines: Anthropology, Sociology, Intersection and Intersectionality. The Sociological Review 65: 35-53.
    Duranti, Alessandro
    2010 Husserl, Intersubjectivity and Anthropology. Anthropological Theory 10(1): 1-20.
    Ecks, Stefan
    2008 Three Propositions for an Evidence-based Medical Anthropology. Journal of the Royal Anthropological Institute 14(S1): S77-S92.
    Emad, Mitra C.
    2006 At WITSENDO: Communal Embodiment through Storytelling in Women's Experiences with Endometriosis. Women's Studies International Forum 29(2): 197-207.
    Esin, Cigdem and Aura Lounasmaa
    2020 Narrative and Ethical (In)action: Creating Spaces of Resistance with Refugee-storytellers in the Calais ‘Jungle’ Camp. International Journal of Social Research Methodology 23(4): 391-403.
    Felten, Renaud, Dan Lipsker, Jean Sibilia, François Chasset and Laurent Arnaud
    2022 The History of Lupus throughout the Ages. Journal of the American Academy of Dermatology, 87(6): 1361-1369.
    Flore, Jacinthe, Renata Kokanović, Felicity Callard, Alex Broom and Cameron Duff
    2019 Unravelling Subjectivity, Embodied Experience and (Taking) Psychotropic Medication. Social Science & Medicine (230): 66-73.
    Frankenberg, Ronald
    1980 Medical Anthropology and Development: A Theoretical Perspective. Social Science & Medicine. Part B: Medical Anthropology 14(4): 197-207.
    Goffman, Erving
    1981 Forms of Talk. Philadelphia: University of Pennsylvania Press.
    Gupta, Sarthak and Mariana J. Kaplan
    2021 Bite of the Wolf: Innate Immune Responses Propagate Autoimmunity in Lupus. The Journal of Clinical Investigation. 131(3):e144918.
    Hale, Elizabeth D., Diane C. Radvanski and Afton L. Hassett
    2015 The Man-in-the-moon Face: A Qualitative Study of Body Image, Self-image and Medication Use in Systemic Lupus Erythematosus. Rheumatology 54: 1220-1225.
    Hardon, Anita and Emilia Sanabria
    2017 Fluid Drugs: Revisiting the Anthropology of Pharmaceuticals. Annual Review Anthropology 46: 117-32.
    Hartigan Junior, John
    2021 Knowing Animals: Multispecies Ethnography and the Scope of Anthropology. American Anthropologist 123: 846-860.
    Hsu, Chung-Yuan, Wen-Chan Chiu, Tsong-Shing Yang, Ching-Lan Chou, Yu-Jih Su,
    Shan-Fu Yu, Chun-Kai Chiu, Ying-Chou Chen, Han-Ming Lai, Tien-Tsai Cheng and Chung-Jen Chen
    2010 Myelitis in Patients with Systemic Lupus Erythematosus. Formosan Journal of Rheumatology 24: 36-43.
    Hsu, Ching-Hui, Ming-Han Chen, Wei-Sheng Chen, Chien-Chih Lai, and Hsiao-Yi Lin
    2013 Relationship between the Level of Anti-double Strand DNA Antibody and Lupus Renal Diseases in Patients with Systemic Lupus Erythematosus. Formosan Journal of Rheumatology 27: 51-58.
    Hochberg, Mark
    1997 Updating the American college of rheumatology revised criteria for the classification of systemic lupus erythematosus. Arthritis & Rheumatism 40: 1725.
    Hurtado, Aída
    2019 Intersectionality. In The Bloomsbury Handbook of 21st-Century Feminist Theory. Robin Truth Goodman, eds. Pp.159-170. UK: Bloomsbury Publishing.
    Husserl, Edmund
    1982[1960] Fifth Meditation. In Cartesian Meditations: An Introduction to Phenomenology. Dorion Cairns, trans. Pp.89-150. The Hague: Martinus Nijhoff Publishers.
    Jesus Diogo, Matos Ana, Henriques Carla, et al
    2019 Derivation and validation of the SLE Disease Activity Score (SLE-DAS): a new SLE continuous measure with high sensitivity for changes in disease activity. Annals of the Rheumatic Diseases 78:365-371.
    Joseph, Janice
    2006 Drug Offenses, Gender, Ethnicity, and Nationality: Women in Prison in England and Wales. The Prison Journal 86(1): 140-157.
    Kamisli, Merih Ugurel
    2021 Acculturation Experiences of Syrian Muslim Refugee Women in the United States: Intersectionality of Nationality, Religion, Gender, and Refugee Status. Adult Learning 32(3): 103-114.
    Kleinman, Arthur and J. Kleinman
    1991 Suffering and Its Professional Transformation: Toward an Ethnography of Interpersonal Experience. Culture, Medicine and Psychiatry 15: 275-301.
    Koven, Michèle
    2002 An Analysis of Speaker Role Inhabitance in Narratives of Personal Experience. Journal of Pragmatics 34(2): 167-217.
    Larsen, Janni Lisander, Elisabeth O.C. Hall, Søren Jacobsen and Regner Birkelund
    2017 Being in a Standstill-of-life: Women’s Experience of Being Diagnosed with Systemic Lupus Erythematosus: A Hermeneutic-phenomenological Study. Scandinavian Journal of Caring Sciences 32: 654-662.
    Larsen, Janni Lisander, Elisabeth O.C. Hall, Søren Jacobsen and Regner Birkelund
    2018 The Existential Experience of Everyday Life with Systemic Lupus Erythematosus. Journal of Advanced Nursing 74(5): 1170-1179.
    Lakoff , George and Mark Johnson
    1980 Metaphors We Live By. Chicago: University of Chicago Press.
    Lacan, Jacques
    1978 The Four Fundamental Concepts of Psycho-Analysis. First American edition. edited by J.-A. Miller. New York: W.W. Norton & Company, Inc.
    Lazar S, Kahlenberg JM.
    2023 Systemic Lupus Erythematosus: New Diagnostic and Therapeutic Approaches. Annual Review of Medicine 74:339-352.
    Levy, Jennifer M.
    2005 Narrative and Experience: Telling Stories of Illness. Nexus (18): 8-33.
    Locke, Piers
    2017 Elephants as Persons, Affective Apprenticeship, and Fieldwork with Nonhuman Informants in Nepal. HAU: Journal of Ethnographic Theory 7(1): 353-376.
    Mackworth-Young, Constance R. S, Virginia Bond and Alison Wringe
    2020 Secrets and Silence: Agency of Young Women Managing HIV Disclosure. Medical Anthropology 39(8): 720-734.
    Mansoor, Taskeen and Saadia Abid
    2020 Negotiating Femininity, Motherhood and Beauty: Experiences of Pakistani Women Breast Cancer Patients. Asian Journal of Women's Studies 26(4): 485-502.
    Mathers, Holly F.
    2000 Negotiating Cultural Consensus in a Breast Cancer Self-Help Group. Medical Anthropology Quarterly 14(3): 394-413.
    McCall, Leslie
    2005　The Complexity of Intersectionality. The University of Chicago Press 30(3): 1771-1800.
    Moroni, Gabriella and Claudio Ponticelli
    2016　Pregnancy in Women with Systemic Lupus Erythematosus (SLE). European Journal of Internal Medicine 32: 7-12.
    Ochs, Elinor and Lisa Capps
    2001 Living Narrative: Creating Lives in Everyday Storytelling. Cambridge: Cambridge University Press.
    Rai, Sarju Sing, Ruth M. H. Peters, Elena V. Syurina, Irwanto Irwanto, Denise Naniche and Marjolein B. M. Zweekhorst
    2020　Intersectionality and Health-related Stigma: Insights from Experiences of People Living with Stigmatized Health Conditions in Indonesia. International Journal for Equity in Health 19: 206-220.
    Reis, Catarina R. Palma dos, Gonçalo Cardoso, Carolina Carvalho, Isabel Nogueira, Augusta Borges and Fátima Serrano
    2019　Prediction of Adverse Pregnancy Outcomes in Women with Systemic Lupus Erythematosus. Clinic Reviews in Allergy & Immunology 59: 287-294.
    Riessman, Catherine Kohler
    2002 Illness Narratives: Positioned Identities. Paper Presented at the Invited Annual Lecture of the Health Communication Research Centre in Cardiff University,
    Wales, U.K.
    Robin, Blaine
    2022 The Politics of Lupus: An Ethnographic Study of Living with Lupus. Saarbrücken: Scholars’ Press.
    Rosemberg, Marie-Anne S. and Jenny Hsin-Chun Tsai
    2014　Connecting Gender, Race, Class, and Immigration Status to Disease Management at the Workplace. Journal of Health Disparities Research and Practice 7(5): 13-31.
    Rutter, Sarah J. and Gundi Kiemle
    2015　Exploring the Social and Interpersonal Experiences of South Asian Women with a Diagnosis of Systemic Lupus Erythematosus. Psychology & Health 30(3): 318-335.
    Sloan, Melanie, Michael Bosley, Moira Blane, Lynn Holloway, Colette Barrere, David D’Cruz, Chanpreet Walia, Felix Naughton, Paul Howard, Stephen Sutton and Caroline Gordon
    2021　‘But You Don’t Look Sick’: A Qualitative Analysis of the LUPUS UK Online Forum. Rheumatol International 41: 721-732.
    Schwartz, Norah Anita and Glascoe, Alysse Von
    2021　The Body in the Mirror: Breast Cancer, Liminality and Borderlands. Medical Anthropology 40(1): 64-78.
    Sherry, Mark
    2016　A Sociology of Impairment. Disability & Society 31(6): 729-744.
    Shoemaker, Sarah J. and Djenane Ramalho de Oliveira
    2008 Understanding the Meaning of Medications for Patients: The Medication Experience. Pharmacy World & Science 30:86–91.
    Skultans, Vieda
    2000 Narrative Illness and the Body. Anthropology & Medicine, 7(1): 5-13.
    Staunæs, Dorthe
    2003 Where have All the Subjects Gone? Bringing Together the Concepts of Intersectionality and Subjectification. Nora: Nordic Journal of Women's Studies 11(2): 101-110.
    Sutanto, Bernadet, Davinder Singh-Grewal, Hugh Patrick Mcneil, Sean O’Neill, Jonathan C. Craig, Julie Jones and Allison tong
    2013 Experiences and Perspectives of Adults Living With Systemic Lupus Erythematosus: Thematic Synthesis of Qualitative Studies. Arthritis Care & Research 65(11): 1752-1765.
    Tijhuis, Marja A.R., Henk D. Flap, Marleen Foets and Peter P. Groenewegen
    1998　Selection in the Social Network: Effects of Chronic Diseases. European Journal of Public Health 8(4): 286-293.
    Tien, Ya-Chih and Ying-Ming Chiu
    2014 Associated Factors for Venous Thromboembolism in Patients with Systemic Lupus Erythematosus Complicated with Lupus Nephritis. Formosan Journal of Rheumatology 28: 44-49.
    Trauth, Eileen M., Curtis C. Cain, K.D. Joshi, Lynette Kvasny, and Kayla M. Booth.
    2016 The Influence of Gender-Ethnic Intersectionality on Gender Stereotypes about IT Skills and Knowledge. SIGMIS Database 47(3): 9–39.
    Tsai, Wei-I, Chien-Sheng Wu and Ping-Ning Hsu
    2009 Invasive Fungal Infections in Systemic Lupus Erythematosus: 10-year Experience in A Teaching Hospital in Taiwan. Formosan Journal of Rheumatology 23: 43-51.
    Vickers, Margaret H.
    1997　Life at Work with “Invisible” Chronic Illness (ICI): The “Unseen”, Unspoken, Unrecognized Dilemma of Disclosure. Journal of Workplace Learning 9(7): 240-252.
    Weiss, Gail
    2013[1999] Introduction. In Body Images: Embodiment as Intercorporeality. Pp.1-6. UK: Routledge.
    Werner, Isaksen and Kirsti Malterud
    2004　‘I am not the Kind of Woman Who Complains of Everything’: Illness Stories on Self and Shame in Women with Chronic Pain. Social Science & Medicine 59(5): 1035-1045.
    West, Candace and Sarah Fenstermaker
    2002　Doing Difference. In Doing Gender, Doing Difference: Inequality, Power, and Institutional change. Candace West and Sarah Fenstermaker, eds. Pp.55-58. New York: Routledge.
    Wikan, Unni
    1992 Beyond the Words: The Power of Resonance. American Ethnologist 19(3):460-482.
    Willis, Evan, Rosemary Miller and Johanna Wyn
    2001 Gendered Embodiment and Survival for Young People with Cystic Fibrosis. Social Science & Medicine 53(9): 1163-74.
    Young, Allan
    1982 The Anthropologies of Illness and Sickness. Annual Review of Anthropology 11: 257-285.
    描述: 碩士
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    110259003
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