政大機構典藏-National Chengchi University Institutional Repository(NCCUR):Item 140.119/53358
English  |  正體中文  |  简体中文  |  Post-Print筆數 : 27 |  全文笔数/总笔数 : 114105/145137 (79%)
造访人次 : 52136083      在线人数 : 125
RC Version 6.0 © Powered By DSPACE, MIT. Enhanced by NTU Library IR team.
搜寻范围 查询小技巧：
  • 您可在西文检索词汇前后加上"双引号"，以获取较精准的检索结果
  • 若欲以作者姓名搜寻，建议至进阶搜寻限定作者字段，可获得较完整数据
    •  进阶搜寻
    政大機構典藏 > 文學院 > 哲學系 > 期刊論文 >  Item 140.119/53358


    请使用永久网址来引用或连结此文件: https://nccur.lib.nccu.edu.tw/handle/140.119/53358


    题名: 精神分裂症病患與家庭成員面臨疾病遺傳不確定情境之生活經驗探討
    其它题名: Facing uncertainty：The exploration on the schizophrenia patients’ and family members’ lived experiences of disease hereditary situations
    作者: 陸雪芬;洪志成;汪文聖;許樹珍
    贡献者: 政大哲學系
    关键词: 精神分裂症;不確定感;遺傳;生活經驗
    Schizophrenia;Uncertainty;Heredity;Living Experience
    日期: 2010-02
    上传时间: 2012-08-20 10:31:01 (UTC+8)
    摘要: 精神分裂症帶給患者與家人多方負面之影響，疾病無法治癒存留遺傳的可能性將對他們生活產生何樣的影響？從相關研究得知精神分裂病者其生活經驗中，疾病不確定感的確存在，至於遺傳方面不確定感的生活經驗探討，目前於國內仍鮮少被論及。目的在於了解精神分裂病者與家人面臨疾病遺傳不確定情境之生活感受經驗為何？方法為以現象學研究法，選取新竹縣兩所醫院的病房與門診之精神分裂病者本人及家人各6名為本研究之樣本。經由資料分析歸納出三大主題「一、承受精神病折騰之苦與遺傳不確定的糾葛—感嘆婚姻夢難圓；二、由疑憂至相信—面對遺傳處境，心中漸有的選擇與決策；三、歷經過渡、重新體驗而面對遺傳病—堅韌守護住一個家。」研究發現病者與家人皆對遺傳的不確定性感到擔心、害怕，有些顯現出焦慮或無望等不同情緒反應。期望研究結果有助護理人員了解，精神病家面臨疾病遺傳不確定情境所遭逢的多重影響與衝擊，以便能依據不同家庭的處境與獨特性，提供適切的諮詢和更佳的照護品質。
    Schizophrenia negatively affects both patients and their families. What are the effects of this incurable, potentially hereditary disease on daily life? Related research shows that schizophrenics tend to experience `uncertainty` in daily life. Discussions on `uncertainty` experienced in daily life in the context of concerns regarding hereditary illness remain scarce in Taiwan.Purpose: This research was designed to gather important data on schizophrenic patients and their family members related to their uncertainties about disease heredity.Methods: Participants were recruited from the psychiatric unit and outpatient services department at two hospitals in Hsinchu County. Research subjects included a total of six schizophrenics and six family members.Results: The three topics deduced from data analysis included: 1. marriage/family difficulties rooted in feelings of suffering and torture related to the psychosis and uncertainties regarding disease heredity; 2. evolution from doubt to trust as patients gradual accept choices and make decisions related to disease heredity; and 3. dealing with disease heredity again after having made a successful transition (i.e. persistence to maintain family ties).Conclusions/Implications for practice: Both patients and family members experienced worry and fear due to uncertainty about the hereditary condition of the disease. Some experienced emotional responses such as anxiety and helplessness. Research results are expected to help nursing personnel understand the multiple effects and impacts of uncertainty toward illness heredity experienced by the patients and their families in order to provide better consultation and medical care quality under differing circumstances depending on the individual characteristics of patients and their families.
    關聯: 護理雜誌, 57(1), 55-63
    数据类型: article
    显示于类别:[哲學系] 期刊論文

    文件中的档案:

    档案 描述 大小格式浏览次数
    0047262x-201002-201004230086-201004230086-55-63[1].pdf1925KbAdobe PDF21033检视/开启


    检视Licence

    在政大典藏中所有的数据项都受到原著作权保护.


    社群 sharing

    著作權政策宣告 Copyright Announcement
    1.本網站之數位內容為國立政治大學所收錄之機構典藏，無償提供學術研究與公眾教育等公益性使用，惟仍請適度，合理使用本網站之內容，以尊重著作權人之權益。商業上之利用，則請先取得著作權人之授權。
    The digital content of this website is part of National Chengchi University Institutional Repository. It provides free access to academic research and public education for non-commercial use. Please utilize it in a proper and reasonable manner and respect the rights of copyright owners. For commercial use, please obtain authorization from the copyright owner in advance.

    2.本網站之製作，已盡力防止侵害著作權人之權益，如仍發現本網站之數位內容有侵害著作權人權益情事者，請權利人通知本網站維護人員(nccur@nccu.edu.tw)，維護人員將立即採取移除該數位著作等補救措施。
    NCCU Institutional Repository is made to protect the interests of copyright owners. If you believe that any material on the website infringes copyright, please contact our staff(nccur@nccu.edu.tw). We will remove the work from the repository and investigate your claim.
    DSpace Software Copyright © 2002-2004  MIT &  Hewlett-Packard  /   Enhanced by   NTU Library IR team Copyright ©   - 回馈