| Reference: | 參考書目
牛頓編輯部
民89 基因大狂潮，台北：牛頓。
毛慶生、朱敬一等 (二版)
民88 經濟學，台北：華泰，頁237-279。
江晃榮
民90 不可思議的生物科技，台北：世茂。
朱敬一、戴華
民86 教育鬆綁，台北：遠流，頁7-30。
吳定
民83 公共政策（全），台北：華視文化事業。
1994 Regulation: Legal Form and Economic Theory. Oxford: Clarendon Press.
Pagnataro, Marisa Anne
2001 “Genetic Discrimination and the Workplace: Employee’s Right to Privacy v. Employer’s Need to Know”, American Business Law Journal, 39: 139-185.
Roberts, Jeffery Scott
1999 Medical Decision Making in Individual at Risk for Alzheimer’s Disease: The Case of Predictive Testing, Ph.D. Dissertation, University of Michigan (Unpublished).
Rothstein, Mark A.
1998 “Genetic Privacy and Confidentiality: Why They Are So Hard to Protect”, Journal of Law, Medicine, and Ethics, 26:198-204.
Rothstein, Mark A., Besty D. Gelb and Steven G. Craig
1998 “Protecting Genetic Privacy by Permitting Employer Access only to Job-Related Employee Medical Information: Analysis of Unique Minnesota Law”, American Journal of Law & Medicine, 24(4): 399-416.
何建志
Beckwith, Jon and Joseph S. Alper
Rothenberg, Karen et al.
1997 “Genetic Information and the Workplace: Legislative Approaches and Policy Challenges”, Science, 275: 1755-1757.
Salamon, Lester M.
1989 Beyond Privatization: The Tool of Government Action. Washington, D.C.: The Urban Institution Press.
2002 The Tools of Government: A Guide to new Governance. New York: Oxford University Press.
Savas, Emanuel S
1987 Privatization : Tthe Key to Better Government. Chatham, N.J. : Chatham House Publishers.
Secretary’s Advisory Committee on Testing, SACGT
2000 Enhancing the Oversight of Genetic Tests: Recommendations of the SACGT. Source: http://www4.od.nih.gov/oba/sacgt.htm
Schneider, Anne I. and Helen M. Ingram
1998 “Reconsidering Genetic Antidiscrimination Legislation”, Journal of Law, Medicine & Ethics, 26: 205-210.
民89a 「就業基因歧視的法理問題與因應之道」，發表於第一屆「基因科技之法律管制體系與社會衝擊研究」研討會 (2000.03.12)，頁1-28。
1990 “Behavioral Assumptions of Policy Tools”, Journal of Politics, 52: 510-529.
Shapira, Zur
1997 Organizational Decision Making, New York: Cambridge University Press.
Sparrow, Malcolm K.
2000 The Regulatory Craft: Controlling Risks, Solving Problems, and Managing Compliance. Washington D.C.: Brookings Institution Press.
Strum, Philippa
1998 Privacy: The Debate in the United States Since 1945. Orlando, Tx: Harcourt Brace & Company.
Thompson, Alison K. and Ruth F. Chadwick
1999 Genetic Information: Acquisition, Access, and Control. New York: Kluwer Academic.
Bemelmans-Videc, Marie-Louise, Ray C. Rist and Evert Vedung
Thompson, B.
民89b 「基因隱私法範本」，載於生物科技與法律研究通訊第七期，頁6-21。
1998 “Time for Reassessment of Use of All Medical Information by UK Insurers”, The Lancet, 352: 1216-1218.
Troy, Edwin S. Flores
1997 “The Genetic Privacy Act: An Analysis of Privacy and Research Concerns”, Journal of Law, Medicine & Ethics, 25: 256-272.
Vertzberger, Yaacov Y. I.
1998 Risk Taking and Decisionmaking: Foreign Military Intervention Decisions. Stanford, CA: Stanford University Press.
Vivacqua, Judy
2000 Genetics and Insurance: A Question of Justice. Master Dissertation, University of St. Michael’s College (Unpublished).
Warfel, William J., Peter Mikolaj and Alex Hamwi
1998 Carrots, Sticks & Sermons: Policy Instruments & Their Evaluation. New Brunswick, New Jersey: Transaction Publishers.
1998 “Genetic Information and Risk Classification in Individual Life and Health Insurance”, Journal of American Society of CLU & ChFC, 44-52.
Wilson, James Q.
民91 「基因資訊與保險：社會政策與法理分析」，發表於第三屆「基因科技與法律研討會」 (2002.6.27)，頁1-32。
1980 The Politics of Regulation. New York: Basic Books.
Wong, Josephine G. and Felice Lieh-Mak
2001 “Genetic Discrimination and Mental Illness: A Case Report ”, Journal of Medical Ethics, 27: 393-397.
Woodside, Kenneth
1986 “Policy Instrument and the Study if Public Policy”, Canadian Journal of Political Science, 19: 775-793.
Other Links
─英文網站
Bennett, Colin J.
http://www.ama-assn.org/
http://www.bio.org/bioethics/discrimination.asp
http://clinton4.nara.gov/WH/New/html/20000208.html
林淑卿
http://www.eeoc.gov/35th/thelaw/13145.html
http://frwebgate.access.gpo.gov/
http://www.geneticalliance.org/
http://www.girinst.org/
http://www.genome.gov/
http://www.house.gov/
1992 Regulating Privacy: Data Protection and Policy in Europe and United States. New York: Cornell University Press.
http://www.law.pitt.edu/mdethics/
http://www.nahu.org/government/issues/genetic_discrimination/
http://netec.mcc.ac.uk/BibEc/data/Papers/fthkobeeb112.html
http://www.ornl.gov/hgmis/elsi/elsi.html
民86 毒品防制政策之問題界定：社會建構的觀點，政大公行所碩士論文，未出版。
http://www.senate.gov/~labor/hearings/july00hrg/072000wt/072000wt.htm
─中文網站
http://www.bio.idv.tw/
http://biolaw.law.ntu.edu.tw/
http://forums.chinatimes.com.tw/special/gene/main.htm
1998 “Regulating the Computer: Comparing Policy Instruments in Europe and the United States”, European Journal of Political Research, 16: 437-466.
http://gcg.nhri.org.tw/gcg/gcg-intro.htm
http://gene-program-office.mc.ntu.edu.tw/
林子儀
民90 「從保障隱私權觀點論基因資訊的利用與法的規制」，發表於台灣大學日本綜合研究中心主辦基因科技的倫理、法律與社會議題學術研討會 (2001.5.26)，頁1-26。
林國明
民90 「風險政治、公共領域與基因科技政策的民主參與」，發表於第二屆基因科技之法律管制體系與社會衝擊研究研討會 (2001.6.10)，頁1-22。
施能傑
民88 「政策執行的要素分析」，載於研考雙月刊，第23卷第4期，頁6-14。
段重祺
民81 歐美四國醫療政策之比較，台北﹕保成文化事業
Blanck, Peter David
范宜芳
民88 美國「失依兒童家庭救助」計畫之研究：政策變遷的觀點，政大公行所碩士論文，未出版。
紀佳伶
民87 電子化/網路化政府資訊內容隱私權之研究，政大公行所碩士論文，未出版。
洪鴻智
民89 「公共選擇與環境風險設施管制政策工具的選擇」，載於都市與計劃，第27卷第一期，頁47-63。
時報文教基金會
民90 打開潘朵拉的盒子？─基因科技的人文議題，台北：時報。
財團法人台灣醫界聯盟基金會 & 行政院衛生署
民90 基因治療與臨床試驗研討會─務實取向的共識凝聚，台北。
2000 Employment Disability, and the Americans with Disabilities Act: Issues in Law, Public Policy, and Research. Evanston, Ill.: Northwestern University Press.
翁興利、施能傑、官有垣、鄭麗嬌
民87 公共政策，台北：空大。
翁秉霖、鄭信男、邱華賢譯 (Barnum原著)
民90 生物科技概論，台北：學富文化。
郭淑貞
民89 科技領域的風險決策之研究─以德國法為中心，台大法研所碩士論文，未出版。
許文源
民89 我國非法外勞管制政策之研究─政策執行理論之觀點，政大公行所博士論文，未出版。
陳櫻琴
民89 「管制革新之法律基礎與政策調適」，發表於中央研究院主辦管制革新學術研討會，頁1-48。
Bressers, Hans Th. A. & Laurence J. O’Toole, Jr.
陳恆鈞等譯 (Weimer & Vining原著)
民91 政策分析：概念與實踐，台北：韋伯文化。
黃明輝
民89 成本效益分析在我國行政法上應用可能性之研究，台北大學法研所碩士論文，未出版。
福田雅章
民90 「人類基因研究過程中之人權與人性尊嚴的保障─告知後同意是真能發揮作用」，發表於台灣大學日本綜合研究中心主辦基因科技的倫理、法律與社會議題學術研討會 (2001.5.26)，頁1-8。
葉俊榮
民82 環境政策與法律，台北：月旦，頁133-168。
民86 環境理性與制度抉擇，台北：三民。
民88a 「政府再造與制度興革：以環境影響評估為例」，載於經社法制論叢，第23期。
吳英明
民88b 全球環境議題─台灣觀點，台北：巨流，頁129-146
民89 行政法案例分析與研究方法，台北：元照。
民90 「生物科技法律人才與研究議題取向」，載於生物技術與法律研究通訊第九期，頁32-41。
雷文玫
民89 「歧視有理？美國管制商業健康保險運用基因資訊之研究」，載於中原財經法學第五期，頁433-465。
齊力文譯 (Davidson原著)
民90 生態經濟大狂潮，台北：經濟新潮。
蔡宗珍
民89a 「程序導向的基因科技立法必要性與其規範內涵初探」，載於生物科技與法律研究通訊第一期，頁1-6。
民89b 「基因科技法的規範架構初論」，收錄於2000年基因科技之法律管制體制與社會衝擊研究研討會資料，頁1-11。
1998 “The Selection of Policy Instruments: a Network-Based Perspective”, Journal of Public Policy, 18(3): 213-239.
民88c 「從憲法觀點論基因科技管制立法的基本課題」載於生命倫理與法律課程網站http://biolaw.law.ntu.edu.tw/BioInstitute/BioCourse.htm ，頁1-9。
民88d 「公法上之比例原則初論─以德國法的發展為中心─」，載於政大法學評論第62期，頁75-103。
民90 「基因科技安全管制法草案評析」，發表於第二屆基因科技之法律管制體系與社會衝擊研究研討會。
蔡宗珍譯
民89 「德國基因科技管制法 (下)」，載於生物科技與法律研究通訊第五期，頁33-41。
蔡宗珍校訂(賴志強、李佳玟譯)
民88 「德國基因科技管制法 (中)」，載於生物科技與法律研究通訊第三期，頁35-41。
蔡甫昌
民90 「基因治療與複製的倫理議題初探」，發表於台灣大學日本綜合研究中心主辦基因科技的倫理、法律與社會議題學術研討會 (2001.5.26)，頁1-15。
蔡宗羲
British Medical Association(BMA)
民84 「公共政策體制與放鬆管制的經濟分析」，載於經濟論壇，第1卷第一期，頁101-109。
劉昭博
民88 資訊不對稱性與政府投機行為之研究，政大公行所碩士論文，未出版。
鄭博仁、謝燦堂
民89 健康密碼：探索人類基因奧秘，台北：聯合文學。
賴志強、李佳玟譯
民88 「德國基因科技管制法 (上)」，收錄於生物科技與法律研究通訊第二期，頁38-46。
鍾芳樺
民89 「基因科技的風險問題─法律對基因科技的風險觀察與調控」，收錄於2000年基因科技之法律管制體制與社會衝擊研究研討會資料，頁1-13。
鍾芳樺、黃舒芃
1998 Human Genetics: Choice and Responsibility. New York: Oxford University Press.
民89 「德國與奧地利基因科技法之初步比較」，收錄於生物科技與法律研究通訊第五期，頁22-32。
Atkinson, Michael M. and Robert A. Nigol
1989 “Selecting Policy Instruments: Neo-Institutional and Rational Choice Interpretations of Automobile Insurance in Ontario”, Canadian Journal of Political Science, 22(1): 107-135.
Bardach, Eugene and R. A. Kagan
1982 Going by the Book: The Problem of Regulatory Unreasonableness”. Philadelphia: Temple University Press.
Bartels, Dianne Mary
2001 Genetics in Health Care: Ethical Challenges in Interactions of Family Systems and Health Systems. Ph.D. Dissertation, University of Minnesota (Unpublished).
Brown, Stuart M.
2003 Essentials of Medical Genomics. New Jersey: Wiley-Liss.
Clinton, William J.
2000 “Executive Order 13145─To Prohibit Discrimination in Federal Employment Based on Genetic Information”, Weekly Compilation of Presidential Documents, 36(6):244-247.
Colby, Jeremy A.
1998 “An Analysis of Genetic Discrimination Legislation Proposed by the 105th Congress”, American Journal of Law & Medicine, 34(4): 443-480.
Cooter, Robert and Thomas Ulen
民80 「從政府管制論環境保護管制」，載於中山社會科學季刊，第六卷第四期。
1997 Law and Economics. Reading, Massachusetts: Addison-Wesley.
Dunn, William
1991 Public Policy Analysis: An Introduction. Englewood Cliffs, New Jersey: Prentice Hall
Fischel, William A.
1995 Regulatory Takings: Law, Economics, and Politics. Cambridge, Mass.: Harvard University Press.
Frye-Penfold, Cynthia B.S.
2000 Responses from Genetic Counselors about the Potential of Insurance Discrimination in Cancer Genetic Counseling. Master Dissertation, Sarah Lawrence College(Unpublished).
Goldberg, Hene V., JD
2001 “Genetic Information Privacy and Discrimination”, Health Care Manager, 20(1): 19-28.
Green, Ronald M. and Mathew A. Thomas
李震山
1998 “DNA: Five Distinguishing Features for Policy Analysis”, Harvard Journal of Law & Technology, 11: 571.
Guasch, J. Luis and Robert W. Hahn
1999 “The Cost and Benefit of Regulation: Implications for Developing Countries”, The World Bank Observer, 14(1): 137-158.
Haider-Markel, Donald P.
1998 “The Politics of Social Regulatory Policy: State and Federal Hate Crime Policy and Implementation Effort”, Political Research Quarterly, 51(1): 69-88.
Harkness, Lorrie
2000 Ethics of Decisions in Public Schools: A Study on Principles Educational Leaders Use to Make Decisions When Faced With Moral Dilemmas Related to The Use of Genetic Technology. Ph.D. Dissertation, University of Colorado at Denver (Unpublished)
Harrington, L. K.
1996 “Ethics and Public Policy Analysis: Stakeholders’ Interests and Regulatory Policy”, Journal of Business Ethics,15: 373-382.
Harrison, E. Frank
民90 「基因資訊利用與基本權利保障─以資訊隱私權及研究自由為例」，發表於台灣大學日本綜合研究中心主辦基因科技的倫理、法律與社會議題學術研討會 (2001.5.26)，頁1-16。
1999 The Managerial Decision-Making Process. Boston: Houghton Mifflin Company.
HGC
2001 “Whose Hands on Your Genes: Analysis of Responses to the tick ox summary section”, http://www.hgc.gov.uk/bisiness_cosultation2.htm
Hill, Mark A. and Stephen S. Rich
2000 “ Genetic Privacy Laws and Patient’s Fear of Discrimination by Health Insurers: The View from Genetic Counselors”, Journal of Law, Medicine & Ethics, 28: 245-257.
Hood, Christopher C
1983 The Tools of Government. London: MacMillan.
Hubbard, Ruth and Elijah Wald
1999 Exploding the Gene Myth. Boston: Beacon Press.
Huggins, Rachel
李建良
2000 Can Genetic Justice Survive? DNA Technology and Social Control in the 21st Century. Master Dissertation, Department of Sociology and Anthropology, Concordia University Montreal, Quebec, Canada (Unpublished).
Josefson, Dwborah
2000 “Clinton Outlaws Genetic Discrimination in Federal Jobs”, British Medical Journal, 320: 468.
Kaveny, M. Cathleen
1999 “Jurisprudence and Genetics”, Theological Studies, 60: 135-147.
Keefer, Christopher M.
1999 “Bridging the Gap Between Life Insurer and Consumer in the Genetic Testing Era: The RF Proposal”, Indian Law Journal, 74: 1374-1397.
Kogelnik, Andreas Matthias
1998 Biological Information Management with Application to Human Genome Data. Ph.D. Dissertation, Georgia Institute of Technology (Unpublished).
Linders, Stephen H. and B. Guy Peters
民89 「法律制度與社會控制：法治國家中法律控制能力及其界限之問題初探」，收錄於林繼文編政治制度，頁49-94。
1990 “Instruments of Governments: Perceptions and Contexts”, Journal of Public Policy, 9(1): 35-58.
Long, Clarisa
1999 Genetic Testing and Use of Information. Washington D.C.: The AEI Press.
Low, Lowrence, Suzanne King, and Tom Wilkie
1998 “Genetic Discrimination in Life Insurance: Empirical Evidence From A Cross Sectional Survey of Genetic Support Groups in the UK”, British Medical Journal, 317:1632-1634.
Macklin, Ruth
“Privacy and Control of Genetic Information”.
http://www.bumc.bu.edu/www/sph/lw/pvl/book2/9-Privacy%20and%20Control.pdf
McDonald, Lee-Anne C.
2000 Multi-disease Genes: The Future of Genetic Counseling. Master Dissertation, Sarah Lawrence College (Unpublished).
杜默譯 (法蘭西斯•福山原著)
McKenzie, Donna M.
1999 Genetic Testing for Delayed Onset Disease: A Feminist Theological Virtue Approach. Ph.D. Dissertation, Berkley, C.A.(Unpublished).
Mcllroy, Elaine Christina
2001 Privacy, Confidentiality and Genetic Database: A Modified Rights Approach. Master Dissertation, Graduate Department of Law, University of Toronto, Canada (Unpublished).
Miller, Paul S.
1998 “Genetic Discrimination in the Workplace”, Journal of Law, Medicine, and Ethics, 26: 189-197.
Nossal, Gustav et al.
1990 Human Genetic Information: Science, Law and Ethics. New York: John Wiley & Sons.
Nutt, Paul C.
1992 Strategic Management of Public and Third Sector Organization: A Handbook for Leaders. San Francisco: Jossey-Bass.
民91 後人類未來，台北：時報。
Ogus, Anthony |
