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    Title: 自閉症兒童父母線上社群的資訊搜尋與情緒表達:網路民族誌研究
    Information seeking and emotional expression among parents of children with Autism Spectrum Disorder: A netnographic study of an online health community
    Authors: 王品然
    Wang, Pin-Ran
    Contributors: 李怡慧
    王品然
    Wang, Pin-Ran
    Keywords: 線上健康社群
    自閉症
    照護者
    討論話題
    情緒表達
    網路民族誌
    Online health communities
    Autism Spectrum Disorder
    Caregivers
    Discussion topics
    Emotional expressions
    Netnography
    Date: 2024
    Issue Date: 2024-09-04 14:04:32 (UTC+8)
    Abstract: 自閉症孩童父母面對孩子一輩子的自閉症挑戰，線上健康社群成為關鍵的支持來 源。然而，文獻卻較少深入研究父母長期在社群中的討論與情感。本研究以此為 研究目的，並進一步探索討論主題與情緒表達之間的關聯。本研究以 Autism Parenting subreddit 論壇為研究目標，使用網路民族誌方法觀察，同時蒐集了 3,843 篇貼文作為檔案資料，並使用自然語言處理輔助內容分析。結果發現，在確診後 的「初步詢問」階段，父母積極參與線上健康社區，尋求具體方法來改善孩子的 症狀。隨著進入「情感掙扎與社會孤立」階段，討論圍繞在孩子的語言發展、飲 食和家庭影響所引起的情緒崩潰。當在「身份形成與角色調整」階段，父母出現 了準備的心理狀態，真正接受自閉症並做出改變，討論聚焦在日常生活的調整。 最後，在「夢想修訂與未來規劃」階段，父母專注於未來的準備、食物與孩子人 生規劃。本研究在理論貢獻上，延伸了 Lutz 等人(2012)在 Adaptation Journey 的討論話題與情感表達。在實務貢獻上，本結果有助於大眾進一步理解自閉症孩 童，幫助新自閉症孩童父母提早認識並能更好的應對育兒過程。
    Parents of children with Autism Spectrum Disorder (ASD) face lifelong challenges, with online health communities (OHC) becoming a crucial source of support. However, the literature has rarely delved into the long-term discussions and emotions of these parents within such communities. This study aims to explore the relationship between discussion topics and emotional expression, focusing on the Autism Parenting subreddit. Using netnography, I observed and collected 3,843 posts as archival data, employing natural language processing to assist content analysis. The results revealed that during the "Initial Inquiry" stage following diagnosis, parents actively participated in OHCs, seeking specific methods to improve their child's symptoms. As they entered the "Psychological Struggles and Social Isolation" stage, discussions centered on emotional meltdowns triggered by children's language development, diet, and family impact. In the "Identity Formation and Role Adjustment" stage, parents showed a readiness to accept ASD and make changes, focusing discussions on daily life adjustments. Finally, in the "Dream Revision and Future Planning" stage, parents concentrated on future preparation, food, and life planning for their children. Theoretically, this study extends the discussion topics and emotional expressions in Lutz et al.'s (2012) Adaptation Journey. Practically, these findings contribute to a deeper understanding of ASD children and help new ASD parents better prepare for and cope with the parenting journey.
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    Description: 碩士
    國立政治大學
    資訊管理學系
    111356029
    Source URI: http://thesis.lib.nccu.edu.tw/record/#G0111356029
    Data Type: thesis
    Appears in Collections:[Department of MIS] Theses

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