政大機構典藏-National Chengchi University Institutional Repository(NCCUR):Item 140.119/116118

政大典藏 > College of Social Science > Graduate Institute of Social Administration and Social Work > Theses > Item 140.119/116118

Please use this identifier to cite or link to this item: https://nccur.lib.nccu.edu.tw/handle/140.119/116118

Title:	智能障礙者雙老家庭照顧負荷、家庭復原力與家庭生活品質之相關性探討 Relationships between care burden, family resilience and family quality of life of the double-ageing families with intellectual disabilities
Authors:	潘季瑤 Pan, Chi Yao
Contributors:	宋麗玉潘季瑤 Pan, Chi Yao
Keywords:	智能障礙者雙老家庭照顧負荷家庭復原力家庭生活品質 Intellectual disability Double-ageing family Care burden Family resilience Family quality of life
Date:	2018
Issue Date:	2018-03-02 11:56:45 (UTC+8)
Abstract:	本研究旨在探討智能障礙者雙老家庭之照顧負荷、家庭復原力與家庭生活品質的關係，並檢驗家庭復原力對照顧負荷與家庭生活品質之調節情形。本研究採取問卷調查法，採便利取樣方式進行資料蒐集工作，研究對象為79戶雙老家庭。資料分析以t考驗、單因子變異數分析、皮爾森積差相關分析與階層迴歸分析進行。研究主要結果如下：一、雙老家庭的照顧負荷程度高，然家庭復原力及家庭生活品質的現況表現也普遍較高；二、照顧負荷與家庭復原力具有顯著負相關；三、照顧負荷與家庭生活品質具有顯著的負相關；四、家庭復原力與家庭生活品質具有顯著的正相關；五、家庭復原力可調節照顧負荷對家庭生活品質之負向效果。本研究根據問卷調查結果，提出實務與後續研究之建議。 The purpose of this study was to probe into the relations between care burden, family resilience and family quality of life of the double-ageing families that contain old parents and their children with intellectual disability, and to examine the moderating effects of the family resilience of care burden and the family quality of life. A questionnaire survey was used in the study which recruited 79 double-ageing families. The data of questionnaire survey were analyzed by t-test, one-way ANOVA, Pearson product-moment analysis, and hierarchical regression analysis. The results of the study were described as the followings： 1.Care burden of caregiver is in high-level；Family resilience and family quality of life levels of double-ageing families are positive, between mid-level and high-level. 2.There was significant negative correlation between care burden and family resilience. 3.There was significant negative correlation between care burden and family quality of life. 4.There was significant positive correlation between family resilience and family quality of life. 5.The family resilience moderated the negative effects of the family quality of life caused from care burden. Based on the results from the questionnaire survey, some suggestions for practice and future studies were proposed.
Reference:	一、中文部分王國羽譯（2000）。老年與智能障礙者延長壽命與促進健康摘要報告：國際智能障礙科學研究學會。國際促進智障者融入社會協會。王國羽(2003)。中老年身心障礙者安置轉銜機制規劃之研究：以心智障礙者為例。台北: 內政部社會司委託研究報告。王國羽、張簡儷詩(2006 )。居家中老年智障者健康照護資源利用與相關問題：兩個時間點的觀察。發表於台灣社會福利學會主編。台灣社會福利學會年會暨國際學術研討會手冊。嘉義：台灣社會福利學會。王國羽(2007)。居家中老年智障者的照顧問題：性別、居住安排與相關論述。身心障礙研究，5 (1) ，1-29。王文娟(2011)。智能障礙者雙老家庭壓力負荷之初探。身心障礙研究，9。王月伶、王文玲(2004)。家庭復原力模式之臨床應用-協助一位呼吸器依賴病患家庭調適之護理經驗。長庚護理，15(1)，90-98。王瀞儀(2015)。智能障礙之中高齡主要照顧者的未來安老規劃。國立成功大學老年學研究所碩士論文，未出版，台南市。古思潔(2016)。家庭復原力與父母身心健康狀況之相關研究:以發展遲緩兒童家庭為例。私立長榮大學社會工作學系碩士論文，未出版，台南市。江麗美、李淑珺、陳厚愷譯(2008)。家族再生:逆境中的家庭韌力與療癒(原作者: Forma Walsh)。臺北:心靈工坊。呂錦綸(2009)。雙重老化智障者家庭照顧負擔與社會支持之研究。私立東吳大學社會工作學系碩士論文，未出版，臺北市。宋麗玉(2002)。精神病患照顧者負荷量表之發展與驗證—以實務應用為取向。社會政策與社會工作學刊，6(1)，61-100。宋麗玉、施教裕(2009)。優勢觀點—社會工作理論與實務。臺北：洪葉文化。宋雅雯、金繼春(2012)。以家庭調整與適應反應模式照顧一個有疾病危機之核心家庭。嘉基護理，12(1)，15-23。吳麗英(2007)。成年智能障礙者家庭生活品質現況之研究。國立嘉義大學家庭研究所碩士論文，未出版，嘉義市。吳慧英(1995)。殘障子女的父母親壓力與其因應策略。特教園丁，10(4)，28-31。李汶軒（2013）。家庭照顧者親職化經驗、照顧負荷與健康狀態之關係。淡江大學教育心理與諮商研究所碩士論文，未出版，新北市。李雅敏﹙2005﹚。身心障礙者家庭之復原力。台東特教，21，8-15。汪麗真（1993）。自閉症兒童母親教養壓力、親職角色適應與教養服務需求之研究。中國文化大學兒童福利研究所碩士論文，未出版，臺北市。利翠珊、蕭英玲（2008）。家庭壓力與韌性。應用心理研究，38，15-16。周耕妃（2014）。抉擇之愛~雙重老化智能障礙者家庭父母之愛與痛。東海大學社會工作系碩士論文，未出版，台中。周月清(2007)。老年婦女照顧負擔與社會支持之研究─以智障者和精神障礙者老年女性照顧者為例。內政部委託報告。林昭吟、林季平(2004)。身心障礙者提前老化現象與健康照護需求之研究。內政部委託研究計畫(編號093-000000AU631-001)。林昀蓉（2001）。接受居家照護老人主要照顧者之照顧負荷、生活品質及其相關因素探討。臺北護理學院碩士論文，未出版，臺北市。林惠琦（1997）。社區精神分裂病患主要照顧者之負荷、社會支持與心理健康。高雄醫學院護理研究所碩士論文，未出版，高雄市。邱皓政（2010）。量化研究與統計分析：SPSS（PASW）資料分析範例解析（五版）。臺北：五南。姚開屏(2002)。台灣版世界衛生組織生活品質問卷之發展與應用。臺灣醫學，6(2)，193-200。唐紀絜(2005)。台灣地區發展遲緩兒童家庭生活品質之研究。國立彰化師範大學特殊教育系博士論文，未出版，彰化縣。唐紀絜、林宏熾、林金定、陳英進、羅淑珍、簡言軒(2005)：特殊幼兒家庭生活品質測量工具之發展-臺灣經驗。身心障礙研究季刊，3(1)， 33-53。馬先芝(2003)，照顧者負荷之概念分析。護理雜誌，50(2)，82-85。孫淑柔(2009)。成年智障者的支持與主要照顧者的負擔及滿意度之研究。2009 年台灣教育學術研討會：社會變遷中的教育發展，新竹：國立新竹教育大學。高寶蓮(1998)。裘馨型肌肉失養症患孩父母親的社會支持、照顧負荷與生活品質的相關探討。高雄醫學院護理研究所碩士論文，未出版，高雄市。許素彬(2007)。特殊幼兒之家庭生活品質分析。東吳社會工作學報，17， 137-169。陳伶珠(2008)。中高齡長期障礙者老化經驗與老年生活期待之研究。國立暨南國際大學社會政策與社會工作學系博士論文，未出版，南投縣。陳伶珠（2011）。雙重老化智能障礙者家庭照顧經驗初探。台灣高齡服務管理學刊，1（1），138-165。陳美花(2006)。身心障礙福利機構管理者對智障老人照顧需求認知之研究。私立實踐大學家庭研究與兒童發展研究所碩士論文，未出版，臺北市。陳政智、陳玠汝（2015）。我們必須面對的議題：智能障礙者及照顧者雙重老化衍生的需求。社區發展季刊，149，311-326。陳奕齡(2001)。初探智障者老化之相關健康與照顧議題。國立中正大學社會福利系碩士論文，未出版，嘉義縣。陳淑瑜(2003)。父母或主要照顧者參與智障子女未來規劃之調查研究。特殊教育研究學刊，25，85-106。陳怡婷、簡吟芳(2008)。家族治療的曙光-家庭韌力初探。諮商與輔導，274，2-6。陳綺雯、林秋菊(2008)。運用家庭調整與適應反應模式於一位愛滋病患家庭之照顧。護理雜誌，55(2)，104-109。郭孟亭、林藍萍、林金定（2014）。智能障礙者雙老家庭之照顧者憂鬱情形及相關因素探討。身心障礙研究，12（4），207-220。陶歡歡(2009)。復原力研究的回顧。襄樊職業技術學院學報，8(5):80-84。張恒豪、顏詩耕(2011)。從慈善邁向權利：臺灣身心障礙福利的發展與挑戰。社區發展季刊，113，402-416。張恆豪、王靜儀（2016）。從「殘障」到「身心障礙」：障礙標籤與論述的新聞內容分析。台灣社會學，31，1-41。張艾寧（2007）。影響社區成年智障者及其家庭使用福利服務之相關因素探討－以新竹市為例。東吳大學社會工作學系碩士論文，未出版，臺北市。張庭瑋（2008）。「甜蜜的負荷」？家庭對於中高齡智障家人的照顧轉銜。台灣大學社會科學院社會工作研究所碩士論文，未出版，臺北市。張秀玉(2003)。從社會工作力量觀點探討身心障礙兒童對家庭的影響。社區發展季刊，102，293-301。馮士軒(2014)。自閉症學生家長親職壓力、壓力因應與家庭生活品質關係之研究。國立彰化師範大學特殊教育系博士論文，未出版，彰化縣。楊蔭芝(2005)。成年智障者家庭壓力因應之研究。國立高雄師範大學碩士論文，未出版，高雄市。趙善如(2006)。家庭資源對單親家庭生活品質影響之探究:以高雄市為例。台大社會學刊，13，109-172。劉淑芬(2008)。視力受損者家庭韌力之研究。國立屏東教育大學碩士論文，未出版，屏東縣。鄭雅莉（譯）（2007）。智能障礙—定義、分類和支持系統（原作者American Association on Mental Retardation, AAMR）。台北：合記圖書出版社。（原著出版年：2002）。鄭麗珍(2008)。高風險家庭的家庭韌力: 敗部復活。應用心理研究，39，8-12。鄭維瑄等譯(2004)。家庭壓力。Patrick C. McKenry, Sharon J. Price 著。臺北：五南。穆佩芬、楊寶圜(2009)。由家庭韌力觀點促進罕見疾病病童家庭健康。源遠護理，3(2)，15-22。顏瑞隆(2016)。輕度自閉症者成長歷程中的家庭韌力探究。國立台灣師範大學特殊教育學系博士論文，未出版，臺北市。二、英文部分 Buys, L., G. Boulton, J. Tedman, H. Edwards, M. Knox and C. Bigby (2008). Issues of Active Ageing: Perceptions of Older People with Lifelong Intellectual Disability, Australasian Journal on Ageing, 27(2): 67-71. Baumbusch, J., Mayer, S., Phinney, A., & Baumbusch, S. (2017). Aging Together: Caring Relations in Families of Adults With Intellectual Disabilities. The Gerontologist, 57(2), 341-347. Brown, I., Anand, S., Fung, W. A., Isaacs, B., & Baum, N. (2003). Family quality of life: Canadian results from an international study. Journal of developmental and physical disabilities, 15(3), 207-230. Brown, I., & Brown, R. (2004). Concepts for beginning study in family quality of life. In A P. Turnbull, I. Brown, & H. R. Turbull (Eds.), Families and people with mental retardation and quality of life: international perspectives, pp.25-47. Brown, I., Brown, R. I., Baum, N. T., Isaacs, B. J., Myerscough, T., Neikrug, S., et al. & Wang, M. (2006). Family Quality of Life Survey: Main caregivers of people with intellectual or developmental disabilities. Toronto: Surrey Place Centre. Chou, K. R., Chu, H., Tseng, C. L., & Lu, R. B. (2003). The Measurement of Caregiver Burden. Journal Medicine Science, 23(2), 73-82. Chiu, C. Y. (2013). Family needs and family quality of life for Taiwanese families of children with intellectual disability and developmental delay, Doctoral dissertation, University of Kansas. Dillenburger, K. and McKerr, L. (2010). How long are we able to go on for? Issues faced by older caregivers of adults with disabilities. British Journal of Learning Disabilities, 39 : 29–38. Fisher, k.(2004). Nursing Care of Special Populations: Issues in Caring for Elderly People with Mental Retardation, Nursing Forum, 39(1):28-31. Gardiner, E., & Iarocci, G. (2012). Unhappy (and happy) in their own way: A developmental psychopathology perspective on quality of life for families living with developmental disability with and without autism. Research in developmental disabilities, 33(6), 2177-2192. Grant, Gordon. (1989). Letting go: Decision-making among family caregivers for people with mental handicap. Australia and New Zealand Journal of Developmental Disabilities, 15(3&4), 189-200. Hoffman, L., Marquis, J., Poston, D., Summers, J. A., & Turnbull, A. (2006). Assessing family outcomes: psychometric evaluation of the Beach Center Family Quality of Life Scale. Journal of marriage and family, 68(4), 1069-1083. Heller, T., Miller, A. B., and Factor, A. (1997). Adults with Mental Retardation as Supports to Their Parents: Effects on Parental Caregiving Appraisal , Mental Retardation, 35:338-346. Heller, T., Caldwell, J., and Factor, A. (2007). Aging Family Caregivers: Policies and Practices, Mental Retardation and Developmental Disabilities Research Reviews, 13(2): 136-142. Hastings, R. P., Allen, R., McDermott, K., and Still, D. (2002). Factors Related to Positive Perceptions in Mothers of Children with Intellectual Disabilities, Journal of Applied Research in Intellectual Disabilities, 15(3):269. Hill, R.(1949). Families under stress. Westport, CT: Greenwood. Isaacs, B. J., Brown, I., Brown, R. I., Baum, N., Myerscough, T., Neikrug, S., & Wang, M. (2007). The international family quality of life project: Goals and description of a survey tool. Journal of Policy and Practice in Intellectual Disabilities, 4(3), 177-185. Innes, A., McCabe, L., & Watchman, K. (2012). Caring for older people with an intellectual disability: A systematic review. Maturitas, 72(4), 286–295. Jokinen, N. S., & Brown, R. I. (2010). Family quality of life and older-aged families of adults with an intellectual disability. In Enhancing the quality of life of people with intellectual disabilities (pp. 279-303). Springer Netherlands. Jokinen, N. S. (2006). Family quality of life and older families. Journal of Policy and Practice in Intellectual Disabilities, 3(4), 246-252. Jokinen, N. S., & Brown, R. I. (2005). Family quality of life from the perspective of older parents. Journal of Intellectual Disability Research, 49(10), 789-793. Jennings, J.(1987). Elderly parents as caregivers for their adult dependent children. Social Work, 32(5), pp.430-433. Lambie, R. A., Leone, S., &Martin, C. K. (1998). Fostering resilience in children and youth. Counseling and Human Development, 30(8), 1-18. Lustig, D. C. (1997). Families with an adult with mental retardation: Empirical family typologies. Rehabilitation Counseling Bulletin, 41(2), 138-158. Montgomery, R. J. V., Gonyea, J. G., & Hooyman, N. R. (1985). Caregiving and the experience of subjective and objective burden. Family Relation, 34(1), 19-26. Nichols, W. C. (2002). Roads to Understanding Family Resilience:1920s to the Twenty-First Century. In Becvar, D. S. (Eds.) Handbook of Family Resilience (pp.3-16). New York, NY: Springer. Petrowski, N. T., Edwards, M., Isaacs, B. J., Baum, N., & Brown, I. (2008). Family quality of life: preliminary analyses from an on-going project. Journal on developmental disabilities, 14(2), 111-114. Poston, D., Turnbull, A., Park, J., Mannan, H., Marquis, J., & Wang, M. (2003). Family quality of life: A qualitative inquiry. Mental retardation, 41(5), 313-328. Park, J., Hoffman, L., Marquis, J., Turnbull, A. P., Poston, D., Mannan, H., & Nelson, L. L. (2003). Toward assessing family outcomes of service delivery: Validation of a family quality of life survey. Journal of Intellectual Disability Research, 47(4‐5), 367-384. Parpa, E., Katsantonis, N., Tsilika, E., Galanos, A., & Mystakidou, K. (2016). Psychometric Properties of the Family Quality of Life Scale in Greek Families with Intellectual Disabilities. Journal of Developmental and Physical Disabilities, 3(28), 393-405. Rillotta, F., Kirby, N., & Shearer, J. (2010). A comparison of two family quality of life measures: An Australian study. In Enhancing the quality of life of people with intellectual disabilities (pp. 305-348). Springer Netherlands. Rillotta, F. (2010). Family quality of life of Australian families with a member with an intellectual/developmental disability: measurement issues. Doctoral dissertation. Roberto, Karen A. (1993). Family caregivers of aging adults with disabilities: A review of the caregiving literature. In Karen A. Roberto (Ed.), The elderly caregiver: Caring for adults with developmental disabilities (pp.3-20). Newbury Park: Sage. Schalock, R. L. (2000). Three decades of quality of life. Focus on Autism & Other Developmental Disabilities, 15, 116-127. Schalock, R. L. (2004). Moving from individual to family quality of life as a research topic. In Turnbull, A., Brown, I., & Turbull III H. R(Eds.), Families and people with mental retardation and quality of life: international perspectives. (pp.11-21), American Association on Mental Retardation, Washington, D. C. Samuel, P. S., Rillotta, F., & Brown, I. (2012). Review: The development of family quality of life concepts and measures. Journal of Intellectual Disability Research, 56(1), 1-16. Seltzer, Marsha M. & Krauss, Marty W. (1989). Ageing parents with adult mentally retarded children: Family risk factors and sources of support. American Journal on Mental Retardation, 94(3), 303-312. Smith, Gregory C. (1996). Caregiving outcomes for older mothers of adults with mental retardation: A test of the two-factor model of psychological well-being Psychology and Aging, 11(2), 353-361. Turnbull, A. P., Summers, J. A., Lee, S. H., & Kyzar, K. (2007). Conceptualization and measurement of family outcomes associated with families of individuals with intellectual disabilities. Developmental Disabilities Research Reviews, 13(4), 346-356. Walsh, F. (2002). A family resilience framework: innovative Innovative practice applications. Families Relations, 51(2), 130-137. Walsh, F. (2003). Family Resilience: AFramework for Clinical Practice. Family Process, 42, No.1, 1-18. Walsh, F.(1998). Strengthening Family Resilience. New York: Guildford Press.
Description:	碩士國立政治大學社會工作研究所 102264006
Source URI:	http://thesis.lib.nccu.edu.tw/record/#G0102264006
Data Type:	thesis
Appears in Collections:	[Graduate Institute of Social Administration and Social Work] Theses

Files in This Item:

File	Size	Format
400601.pdf	2040Kb	Adobe PDF2	78	View/Open

社群 sharing

Loading...